Everyone tells me that there is no cure. That it is a progressive disease and exercise and drugs can only prolong the inevitable. Doctors don’t seem to have any of the latest tricks in their arsenal to combat the disease. Only a few are working on stem cell research. Seems to me to be a cop out that neurologist can’t give a straight answer to a patient. Where are all the $$$ going for medical research and why can’t we see any new developments or cures for the myriad of diseases such as Parkinson’s? We don’t know what causes Parkinson’s disease. We don’t have a cure for it yet? We don’t know how to treat it other than DBS (Deep Brain Surgery) We don’t have any drugs that are totally effective. The drugs we do prescribe cause many other problems and require additional drugs for depression, high blood pressure, incontinence, insomnia…etc. How about a cure already? What about prevention? How about providing something for all the dollars we spend on this dreadful disease?
I was just diagnosed with Addison’s Disease (Adrenal insufficiency) and my biggest problem is that my heart has become rather weak as a result of going undiagnosed for years. I really don’t trust any of my doctors to give me a straight answer so that is why I am asking here. I had a normal echo recently, but my heartbeat and pulses are weak and my blood pressure averages 95/60 ish and getting lower as I have gotten sicker. When they start me on the hydrocortisone and florinef and all that can my heart become strong again?
I was just diagnosed two days ago and they want to do some more test to check for tuberculosis before they give me the treatment. And to answer about my distrust in doctors, well I saw about 50 different doctors since I fell ill and not one of them was able to figure out what was wrong with me until I met my endocrinologist. Over the last year I was misdiagnosed with DEPRESSION, GENERALIZED ANXIETY DISORDER, CONVERSION DISORDER, IRRITABLE BOWEL SYNDROME, MITRAL VALVE PROLAPSE SYNDROME, SOMATIZATION DISORDER, HYPOCHONDRIASIS…….WOW!
That is why I do not trust doctors, because not one of them even considered that I may be experiencing Adrenal failure. This includes 3 hospitalizations this year where "no one can figure out what is wrong" took place. Turns out I was having Addisonian Crisis symptoms all 3 times. They had THREE times to figure it out. My blood work showed: Elevated Potassium and BUN. Lowered Sodium and Chloride. I had a resting heart rate of 120. Smart guys….
